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CrowdMed.com
06-10-2013, 04:50 PM #1
UniqueStranger Art in my heart
Posts:14,838 Threads:443 Joined:Jun 2012
Quote:The Big Problem

Diagnostic nightmares like Carly’s are more common than you might think. Over 350 million people worldwide, roughly 8% of the population, suffer from one of 7,000 rare and difficult-to-diagnose medical diseases. It often takes them many years and dozens of doctor visits to find a correct diagnosis, and some of them die without one.

The problem is that no single individual, even a doctor, can keep track of thousands of unique medical disorders, with hundreds of new ones discovered each year. Further, physicians are accustomed to recognizing and diagnosing common diseases, not rare ones like Carly’s.

https://www.crowdmed.com/our-story

I think this is a wonderful idea and at the very least will help people save some of their hard-earned money.

I also noticed that people are beginning to post their ill health symptoms on conspiracy forums in a desperate attempt to get help. It's quite interesting to read the diagnoses and how in-depth discussions can reveal other factors that may cause ill health.
06-10-2013, 05:13 PM #2
Octo Mother Superior
Posts:40,960 Threads:1,544 Joined:Feb 2011
That's very cool! Unfortunately not many doctors appreciate that you find answers on the internet 13.gif
06-10-2013, 05:15 PM #3
JayRodney ⓐⓛⓘⓔⓝ
Posts:30,246 Threads:1,477 Joined:Feb 2011
Very interesting, the system is woefully inadequacy in dealing with these rare conditions. So often things like asthma, migraines and depression are diagnosed, when in reality; they are all symptomatic of candida.
If they can't get something that common right, how the heck are they supposed to diagnose, for example; the condition she had. So rare it affects 1 in 15,000 females.
Really interesting concept for a website. Doctors around here don't care for it when you diagnose over the internet.
They have a little egocentric disorder I've diagnosed them with. chuckle.gif

wonder.gif
06-10-2013, 05:25 PM #4
UniqueStranger Art in my heart
Posts:14,838 Threads:443 Joined:Jun 2012
I expect there will be a mixture of different types of health professionals offering their expertise, such as naturopaths, Chinese herbalists, etc.

Yes, and perhaps they will start a forum on that website where regular people can have discussions about diet-causing factors.
Anonymous Kritter Show this Post
06-10-2013, 05:52 PM #5
Anonymous Kritter Incognito Anonymous
 
Well this is a timely post. I was discussing with a friend his med condition, who has been left in limbo,by the conventional healthcare system. Shall forward this on. Might help him out. Thanks for posting.
06-10-2013, 06:00 PM #6
UniqueStranger Art in my heart
Posts:14,838 Threads:443 Joined:Jun 2012
You are welcome and I think there are more people out there who leave the doctor's office hearing "Your tests came back and we found nothing".
06-13-2013, 10:37 PM #7
UniqueStranger Art in my heart
Posts:14,838 Threads:443 Joined:Jun 2012
(06-10-2013, 05:52 PM)Anonymous Kritter Wrote:  Well this is a timely post. I was discussing with a friend his med condition, who has been left in limbo,by the conventional healthcare system. Shall forward this on. Might help him out. Thanks for posting.


Hey AK, I was just wondering if your friend posted his condition on this site, and if so, what quality of replies did s/he receive?
Anonymous Kritter Show this Post
06-14-2013, 12:33 AM #8
Anonymous Kritter Incognito Anonymous
 
(06-10-2013, 05:13 PM)Octo Wrote:  That's very cool! Unfortunately not many doctors appreciate that you find answers on the internet 13.gif


For a good reason, unfortunately. There's a lot more hypochondriacs than there are people with rare illnesses...
06-14-2013, 12:40 AM #9
Octo Mother Superior
Posts:40,960 Threads:1,544 Joined:Feb 2011
That is true. And I was also told (by a doctor) that a lot of old folks make an appointment because it's the only social interaction they have. sad2.gif
06-14-2013, 02:03 AM #10
UniqueStranger Art in my heart
Posts:14,838 Threads:443 Joined:Jun 2012
I don't believe the site is just for people with rare illnesses, rather a site for people who don't know what they have...it could be rare, then again not. The fact is there are alot of people out there with medical symptoms where traditional western dcotors fall short of understanding or identifying, such as investigating people's diets, their use of herbal medication, herbals, etc. They are not all-inclusive as to diagnosing beyond their existing testing. I even think that the up and coming doctors don't really use their wherewithall and expertise to go beyond the laboratory and other test results.

That's why I am interested to know what types of replies AK's friend received. If some of the replies were from dieticians, naturopaths, herbalists, etc.



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