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Prayers For Nigel
09-06-2016, 02:56 AM #211
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
Hi Nigel,

Sorry I haven't checked in on you today - I have had a really bad unfortunate thing happen to me this afternoon after training (obviously nothing anywhere near as bad as the things you are facing, and I am not going to derail the thread/bore everybody by detailing it here) :-)

In my heart I want to ask you to not do the second round of chemo. .... but that first round gave you a few days of thinking and breathing space which enabled us to bring supplies to you, to visit you, and for people to learn about your story, and made ir possible for you to start your alternative regimen.

So - maybe the second round of chemo might give you a bit MORE time.....but then again chemo kills ALL cells - healthy or cancerous. So maybe you had a "lucky" escape with the first lot and who knows what the second may do.

It is a hard thing to advise on. You are sounding so good, and seem to be really giving this cancer a damn good thrashing, compared to a few weeks ago I suppose I am frightened that the chemo may weaken you and then you will become ill due to associated risks.

You gave me a hug when I arrived and when I left, and that was NOT the hug of a weak, dying man. You have so much strength in you, it is difficult to advise you to make a decision that to be honest, either options have the chance of weakening you.

If you take the chemo, you have a chance of some extra time (is there a chance at all, even slight, of any remission hopes if you try the chemo?) but you also run the risk of being weakened, being susceptible to literally dying from a common Cold if your immune system gets fkd by the chemo, and feeling ill from the chemo as well as ill from the cancer.

If you don't take the chemo, you have the chance of continuing to use the alternative meds, and if successful you can give a massive two finger salute to the medical community who doubted you, as well as the knowledge that you did it and that you are living proof that it is possible. Or on the other hand if it is not effective, the cancer will spread and take you. But at least you will be ill from the cancer itself and not the chemo on top of that.

Hell. I don't know.
We just want you to live.
And REALLY live.
X

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"
09-06-2016, 03:02 AM #212
S27 <3
Posts:82 Threads:0 Joined:Sep 2016
I love your post Little L, and I hope your personal situation gets better fast. I'll say a prayer for you friend.

hug.gif
09-06-2016, 03:04 AM #213
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-06-2016, 02:56 AM)Little L Wrote:  Hi Nigel,

Sorry I haven't checked in on you today - I have had a really bad unfortunate thing happen to me this afternoon after training (obviously nothing anywhere near as bad as the things you are facing, and I am not going to derail the thread/bore everybody by detailing it here) :-)

In my heart I want to ask you to not do the second round of chemo. .... but that first round gave you a few days of thinking and breathing space which enabled us to bring supplies to you, to visit you, and for people to learn about your story, and made ir possible for you to start your alternative regimen.

So - maybe the second round of chemo might give you a bit MORE time.....but then again chemo kills ALL cells - healthy or cancerous. So maybe you had a "lucky" escape with the first lot and who knows what the second may do.

It is a hard thing to advise on. You are sounding so good, and seem to be really giving this cancer a damn good thrashing, compared to a few weeks ago I suppose I am frightened that the chemo may weaken you and then you will become ill due to associated risks.

You gave me a hug when I arrived and when I left, and that was NOT the hug of a weak, dying man. You have so much strength in you, it is difficult to advise you to make a decision that to be honest, either options have the chance of weakening you.

If you take the chemo, you have a chance of some extra time (is there a chance at all, even slight, of any remission hopes if you try the chemo?) but you also run the risk of being weakened, being susceptible to literally dying from a common Cold if your immune system gets fkd by the chemo, and feeling ill from the chemo as well as ill from the cancer.

If you don't take the chemo, you have the chance of continuing to use the alternative meds, and if successful you can give a massive two finger salute to the medical community who doubted you, as well as the knowledge that you did it and that you are living proof that it is possible. Or on the other hand if it is not effective, the cancer will spread and take you. But at least you will be ill from the cancer itself and not the chemo on top of that.

Hell. I don't know.
We just want you to live.
And REALLY live.
X

Thank you Lynsey. Yep that pretty much sums up what's been going through my head recently. And I am still no closer to making a decision over it. Damn this.
I ma getting lots of emails over this. About half those are saying to go ahead and take it and the other half saying don't do it.

This has to be the most difficult decision someone could ever be faced with!

What did you have happen after training? Please share it.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-06-2016, 03:06 AM #214
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-06-2016, 03:02 AM)S27 Wrote:  I love your post Little L, and I hope your personal situation gets better fast. I'll say a prayer for you friend.

hug.gif

Hey Tara check your inbox please.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-06-2016, 03:07 AM #215
S27 <3
Posts:82 Threads:0 Joined:Sep 2016
I'm not sure how to embed vids here yet, but I wanted to share some that I recorded today at the beach here. We have a big storm off the coast, not even all that close to me yet, and it's already creating lots of wind and ocean waves! It's beautiful. I hope you enjoy. And of course, I hope you are feeling well and will get some good rest.

Be sure to turn your volume down a bit as the wind is loud!





09-06-2016, 03:11 AM #216
S27 <3
Posts:82 Threads:0 Joined:Sep 2016
(09-06-2016, 03:06 AM)NODOOM Wrote:  
(09-06-2016, 03:02 AM)S27 Wrote:  I love your post Little L, and I hope your personal situation gets better fast. I'll say a prayer for you friend.

hug.gif

Hey Tara check your inbox please.

I responded : )
09-06-2016, 03:15 AM #217
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-06-2016, 03:11 AM)S27 Wrote:  
(09-06-2016, 03:06 AM)NODOOM Wrote:  
(09-06-2016, 03:02 AM)S27 Wrote:  I love your post Little L, and I hope your personal situation gets better fast. I'll say a prayer for you friend.

hug.gif

Hey Tara check your inbox please.

I responded : )

Thanks.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-06-2016, 03:21 AM #218
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
Someone had gotten into my bag whilst I was travelling and stolen the entire contents of the front compartment. It was a three hour journey - two buses and a train, and I have no idea when it happened.

My new bottle of Dryhands, RADAR disabled toilet key, £ 60 that I am supposed to be giving to my costume maker tomorrow for part payment for my costume, spare phone battery, Travel charger, even socks, hair bobbles and my half eaten sandwich and half a bottle of water. And a few other bits and pieces. Luckily they also took all the assorted crap and old receipts that I have been too lazy to throw away.

Looking on the bright side, I am very lucky. I usually keep my travel pass, bank cards and phones (I have 3 phones.....personal one, and 2 work ones - one for each job I have) in that section. I was rushing to leave my training session so just scooped everything into the back main compartment of my backpack.

I'm gutted that my sweaty stinky pole gear wasn't in the front coz they wouldn't have liked THAT!

And now I have developed a strange itchy spotty rash all up my legs.

I phoned 101, who advised me to report it to my local police station, but as I am rural our police station is only open probably about 3 hours a week. Also it happened sometime between Bradford and Huddersfield so have no idea where it happened.

I am there doing competition prep and training every day this week for 6 hours a day, so I will report it at Bradford station tomorrow before I start.

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"
09-06-2016, 03:23 AM #219
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
The thing that has got me the most mad is them taking the half eaten sandwich and half a bottle of water.

How effing petty can you get?!

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"
09-06-2016, 03:26 AM #220
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-06-2016, 03:21 AM)Little L Wrote:  Someone had gotten into my bag whilst I was travelling and stolen the entire contents of the front compartment. It was a three hour journey - two buses and a train, and I have no idea when it happened.

My new bottle of Dryhands, RADAR disabled toilet key, £ 60 that I am supposed to be giving to my costume maker tomorrow for part payment for my costume, spare phone battery, Travel charger, even socks, hair bobbles and my half eaten sandwich and half a bottle of water. And a few other bits and pieces. Luckily they also took all the assorted crap and old receipts that I have been too lazy to throw away.

Looking on the bright side, I am very lucky. I usually keep my travel pass, bank cards and phones (I have 3 phones.....personal one, and 2 work ones - one for each job I have) in that section. I was rushing to leave my training session so just scooped everything into the back main compartment of my backpack.

I'm gutted that my sweaty stinky pole gear wasn't in the front coz they wouldn't have liked THAT!

And now I have developed a strange itchy spotty rash all up my legs.

I phoned 101, who advised me to report it to my local police station, but as I am rural our police station is only open probably about 3 hours a week. Also it happened sometime between Bradford and Huddersfield so have no idea where it happened.

I am there doing competition prep and training every day this week for 6 hours a day, so I will report it at Bradford station tomorrow before I start.

Oh! Sorry to hear about that :( At least as you say you were fortunate not to have phones or travel pass in there as you normally would. Karma will bite them back at some time, rest assured of that.

Take care ok.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-06-2016, 03:28 AM #221
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-06-2016, 03:23 AM)Little L Wrote:  The thing that has got me the most mad is them taking the half eaten sandwich and half a bottle of water.

How effing petty can you get?!

Perhaps they were hungry.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-06-2016, 03:30 AM #222
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
Well I hope they bloody choke on it. Lol


Anyway.


Back to you.


How long do you have before you have to make the decision? 24 hours ish?

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"
09-06-2016, 03:33 AM #223
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-06-2016, 03:30 AM)Little L Wrote:  Well I hope they bloody choke on it. Lol


Anyway.


Back to you.


How long do you have before you have to make the decision? 24 hours ish?

I will have to make the decision within about 8 hrs! That is because if I agree then they will have to prepare it and give it to me in the afternoon.

So not long.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-06-2016, 03:39 AM #224
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
Oh bloody hell.

So unfair having to make such a momentous decision in such a short amount of time.

Do you think the short timescale is kind of on purpose?

I might have my tinfoil hat on a little too well - thinking that the short timescale is on purpose to shock you into making a snap decision. But then of course we are aware that time is not on your side
.....at the moment.

Oh damn.

Are you experiencing a complete 50/50 decision split, or is one option slightly in front of the others?

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"
09-06-2016, 03:41 AM #225
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
Have your most recent tests shown any further reduction in the tumour size?

If you don't have the chemo this time is there a chance of some further down the line? Or are they gonna refuse it if you continue to take the alt meds?

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"



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