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Prayers For Nigel
09-10-2016, 10:00 AM #361
MadameConcorde Member
Posts:100 Threads:0 Joined:Sep 2016
(09-10-2016, 09:25 AM)NODOOM Wrote:  The problem with the blood is that the cancer has spread to the bone marrow. The bone marrow is where the new blood is made. So if the cancer is also in the marrow then I am not making good quality new blood.

I think also this going back and forth for periods in the hospital makes it difficult with the anxiety and not stable life style.

I thank you for your thoughts my friend they are much appreciated.

Nigel.

I am just trying to understand what's going on and why your doctors only have chemo to offer when it can only make things worse.

Looking it up online.

Bones metastases
What myeloma?
Myeloma: a compromised bone marrow
Multiple myeloma is a bone marrow disease (not to be confused with the spinal cord). This is not a cancer of the bone, strictly speaking, but a cancer of the content of the bone. It is in the bone marrow and, in particular, large long bones such as the femur that blood cells are produced: white blood cells, red blood cells and platelets. This production is intense as it is estimated that every day, more than 400 billion blood cells are produced.


Defense against infections
Among the white blood cells, a special type called plasma cell is responsible for making antibodies. The antibodies (or immunoglobulins) have a particularly important role in the defense of our body against infections, for example. There are also several types of immunoglobulins A, D, E, G, M ... which have different roles.


Genetic mutation
Development myeloma is caused by a genetic mutation in one of the individual white blood cells, which will begin to multiply in an uncontrolled manner. By multiplying, they will produce an immunoglobulin (antibody) identical. This is called "monoclonal protein" (as from a single cell that is multiplied uncontrollably) or paraprotein.


Blood cells. Can't they prevent this development or at least keep it from multiplying?

If they are keeping you in the hospital it means there must be something that can be done to improve the situation? or they might as well send you back home and have you under home care.

Dafuq doctors??

There's got to be a way!

We want you to improve and stay with us.
09-10-2016, 04:03 PM #362
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 04:35 PM #363
MadameConcorde Member
Posts:100 Threads:0 Joined:Sep 2016
(09-10-2016, 04:03 PM)NODOOM Wrote:  Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

All in all this is great news.

In fact you are improving. It's not bad at all.

You are showing them once again that you will make it.... and then they gave you only 3 days to live and they thought you would not make it through the weekend.

If you go home the anxiety will go away. You will be in an environment you like and the stress will subside. The psychological aspect is very very important and then you can continue your alternative treatment.

I am so happy to hear this.
Now I hope you can go home soon.

You are incredible.

So much will power and motivation!!
09-10-2016, 04:41 PM #364
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-10-2016, 04:35 PM)MadameConcorde Wrote:  
(09-10-2016, 04:03 PM)NODOOM Wrote:  Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

All in all this is great news.

In fact you are improving. It's not bad at all.

You are showing them once again that you will make it.... and then they gave you only 3 days to live and they thought you would not make it through the weekend.

If you go home the anxiety will go away. You will be in an environment you like and the stress will subside. The psychological aspect is very very important and then you can continue your alternative treatment.

I am so happy to hear this.
Now I hope you can go home soon.

You are incredible.

So much will power and motivation!!

But on this occasion it is me that is not sure about going home as I really do not feel too well. I am thinking of giving it until Monday. I am just trying to be responsible here. And if I am not well then it is maybe better to stay in and wait for a couple of days and see how I feel then.

dunno.gif

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 04:56 PM #365
MadameConcorde Member
Posts:100 Threads:0 Joined:Sep 2016
(09-10-2016, 04:41 PM)NODOOM Wrote:  
(09-10-2016, 04:35 PM)MadameConcorde Wrote:  
(09-10-2016, 04:03 PM)NODOOM Wrote:  Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

All in all this is great news.

In fact you are improving. It's not bad at all.

You are showing them once again that you will make it.... and then they gave you only 3 days to live and they thought you would not make it through the weekend.

If you go home the anxiety will go away. You will be in an environment you like and the stress will subside. The psychological aspect is very very important and then you can continue your alternative treatment.

I am so happy to hear this.
Now I hope you can go home soon.

You are incredible.

So much will power and motivation!!

But on this occasion it is me that is not sure about going home as I really do not feel too well. I am thinking of giving it until Monday. I am just trying to be responsible here. And if I am not well then it is maybe better to stay in and wait for a couple of days and see how I feel then.

dunno.gif

Do what you think is best. You can talk it over with them. Maybe it is better that you stay in the hospital an extra day or two and then see how you feel.

Your decision is the right decision. You know what is best for you.
We want you to be safe.
09-10-2016, 05:05 PM #366
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-10-2016, 04:56 PM)MadameConcorde Wrote:  
(09-10-2016, 04:41 PM)NODOOM Wrote:  
(09-10-2016, 04:35 PM)MadameConcorde Wrote:  
(09-10-2016, 04:03 PM)NODOOM Wrote:  Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

All in all this is great news.

In fact you are improving. It's not bad at all.

You are showing them once again that you will make it.... and then they gave you only 3 days to live and they thought you would not make it through the weekend.

If you go home the anxiety will go away. You will be in an environment you like and the stress will subside. The psychological aspect is very very important and then you can continue your alternative treatment.

I am so happy to hear this.
Now I hope you can go home soon.

You are incredible.

So much will power and motivation!!

But on this occasion it is me that is not sure about going home as I really do not feel too well. I am thinking of giving it until Monday. I am just trying to be responsible here. And if I am not well then it is maybe better to stay in and wait for a couple of days and see how I feel then.

dunno.gif

Do what you think is best. You can talk it over with them. Maybe it is better that you stay in the hospital an extra day or two and then see how you feel.

Your decision is the right decision. You know what is best for you.
We want you to be safe.

Thanks. I have decided to stay that extra couple of days.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 05:12 PM #367
Daddysgirl Member
Posts:37 Threads:4 Joined:Dec 2015
What kind of pain are you in these days? Do they still have you on morphine and if so, does it help?
09-10-2016, 05:16 PM #368
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-10-2016, 05:12 PM)Daddysgirl Wrote:  What kind of pain are you in these days? Do they still have you on morphine and if so, does it help?

Pain in many places. I can have morphine anytime I request it that is not an issue. But I am trying not to rely on morphine as it is not good stuff to get addicted to.

I only request it occasionally if the pain becomes unbearable.

Hope you are having a good weekend.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

I-Mezzo Show this Post
09-10-2016, 06:13 PM #369
I-Mezzo Incognito Anonymous
 
(09-10-2016, 04:03 PM)NODOOM Wrote:  Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

I am with you on this Nigel. Your not feeling well does not have to do with the place you are in. Yes, of course, there are doctors and nurses running around more in the hospital, but I can not get other than the impression that being at home will at least keep your mind a bit off all that care over there, with vibes almost aimed at making it as easy as possible for you to what they believe is inevitably coming.

Of course, I know it is not a key to guaranteed succes, but at least at home you don't have those vibes and can follow your own rules and schedule. So in that respect chosing home would also be my best choice.

What is very encouraging is that your platelet level is that high and from the 300.000 earlier hardly has changed. If you combine that with the sodium level not dropping further, you could say that those key factors give more hope again and reason to fight more (if that is even possible.)

I admire your mind Nigel, your updating, your will to beat this. In my book you are the true hero in this and an example for many. Showing us not to give up, ever, no matter how dark times seem and find alternative ways to get back on top of things. That attitude deserves our utmost respect and strenghtens us in the believe that any bad and life threatening situation can be overcome.

So in that light, thank you for all that you are and do. You are the best example anyone can get. I am raising my Heineken to you. Cheers mate.

Will check back again later. Stay safe and you know Nigel, still wanting to see that wheelie in the future. But please, take your time!
09-10-2016, 06:15 PM #370
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Hello Nigel,

I am a defector from the Other site ..... I always liked your posts there as NODOOM, was horrified at the news a month ago, and have been praying for and thinking of you daily ever since.
I was so bloody mad when the threads disappeared. I've HAD it with that site. Tracked you down here, and have just registered!

There is nothing I can say, and to tell you to 'fight' would be redundant, you *have* been fighting this the whole time, it's your body that's weak, not your inner strength. I just wish you no pain, and a miraculous recovery, and I keep talking to God about you.

NB, no, none of us can have great weekends, knowing you're in hospital in pain!

Love ya.
09-10-2016, 06:22 PM #371
Octo Mother Superior
Posts:41,143 Threads:1,533 Joined:Feb 2011
You're all welcome here. You're among friends
09-10-2016, 06:27 PM #372
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-10-2016, 06:15 PM)Arcturian Wrote:  Hello Nigel,

I am a defector from the Other site ..... I always liked your posts there as NODOOM, was horrified at the news a month ago, and have been praying for and thinking of you daily ever since.
I was so bloody mad when the threads disappeared. I've HAD it with that site. Tracked you down here, and have just registered!

There is nothing I can say, and to tell you to 'fight' would be redundant, you *have* been fighting this the whole time, it's your body that's weak, not your inner strength. I just wish you no pain, and a miraculous recovery, and I keep talking to God about you.

NB, no, none of us can have great weekends, knowing you're in hospital in pain!

Love ya.

I think a lot of the decent people from the other site have had it after that last escapade. They really showed their true colors in that.

It is nice you have found yourself here, bit of shrewd detective work on your art there.

You will find this site very different. Much more friendly without all the hatred. I found KB a number of years ago and have enjoyed my time here. You will however find it much quieter, I guess that's due to there not being all that hatred and bullshit. But it is a good site and you will find many nice people here.

Thank you for those kind words and for the prayers they are very much appreciated.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 06:28 PM #373
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-10-2016, 06:22 PM)Octo Wrote:  You're all welcome here. You're among friends

yup.gif

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 07:06 PM #374
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Thank you Nigel (and Octo), and in fact I am happy you led us here, I had never heard of it and it looks great. 'Quieter' is fine, yes, most of the noise on that other site is the sound of baboons screaming and snakes hissing! When I saw all threads with your name in had been wiped, I tried to post about it, but your name or ID meant an instaban! I can get round bans, but that wasn't the point - it was disgusting, I want nothing more to do with them.

I so wish we could do something. I'm at the other end of England and broke, otherwise I'd visit you. (I used to live in S. London, and know Woolwich).
You are better off in hospital at the moment than the stress of having to keep adjusting to home, hospital, home, hospital; if your sodium levels plummet again, they can monitor you, rather than you suddenly finding yourself lying on the floor.

I've had many nasty things to deal with in my life, come close to death several times (I nearly died n childbirth, and again with kidney disease, plus other life horrors), and I'm painfully aware that no matter how sympathetic and supportive we are, YOU are the one going through it, and although being surrounded in the ethers by love and concern is a heck of a lot better than being spat on and abandoned, it doesn't solve the problem, does it? But at least know that we *are* here, and you're on our minds all the time.
09-10-2016, 07:23 PM #375
NODOOM Truthtard
Posts:4,897 Threads:522 Joined:Sep 2012
(09-10-2016, 07:06 PM)Arcturian Wrote:  Thank you Nigel (and Octo), and in fact I am happy you led us here, I had never heard of it and it looks great. 'Quieter' is fine, yes, most of the noise on that other site is the sound of baboons screaming and snakes hissing! When I saw all threads with your name in had been wiped, I tried to post about it, but your name or ID meant an instaban! I can get round bans, but that wasn't the point - it was disgusting, I want nothing more to do with them.

I so wish we could do something. I'm at the other end of England and broke, otherwise I'd visit you. (I used to live in S. London, and know Woolwich).
You are better off in hospital at the moment than the stress of having to keep adjusting to home, hospital, home, hospital; if your sodium levels plummet again, they can monitor you, rather than you suddenly finding yourself lying on the floor.

I've had many nasty things to deal with in my life, come close to death several times (I nearly died n childbirth, and again with kidney disease, plus other life horrors), and I'm painfully aware that no matter how sympathetic and supportive we are, YOU are the one going through it, and although being surrounded in the ethers by love and concern is a heck of a lot better than being spat on and abandoned, it doesn't solve the problem, does it? But at least know that we *are* here, and you're on our minds all the time.

Yes you are absolutely correct on the danger of sodium levels. I know immediately when they have dropped due to the spaced out confused state my mind gets in. It is not a pleasant feeling i can tell you. The further they drop the more confused I become and the more dizzy and spaced out I feel.

Hopefully this will improve by Monday and then I will be happy to go home. I have a disabled electric scooter waiting to be delivered but have not been at home to take delivery of yet. This will make me at least mobile thereby increasing my quality of life.

I am happy to see it is not an issue the site being quiet. And yes there are not the "Baboons and snakes" on here and that makes it worth it.

Looks like you have had your share of dangerous illness but managed to pull through each time. The support I get from good people like yourself does make a big difference in my moral and I am sure helps toward my recovery.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014




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