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Prayers For Nigel
09-10-2016, 05:12 PM #376
Daddysgirl Member
Posts:42 Threads:4 Joined:Dec 2015
What kind of pain are you in these days? Do they still have you on morphine and if so, does it help?
09-10-2016, 05:16 PM #377
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-10-2016, 05:12 PM)Daddysgirl Wrote:  What kind of pain are you in these days? Do they still have you on morphine and if so, does it help?

Pain in many places. I can have morphine anytime I request it that is not an issue. But I am trying not to rely on morphine as it is not good stuff to get addicted to.

I only request it occasionally if the pain becomes unbearable.

Hope you are having a good weekend.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

I-Mezzo Show this Post
09-10-2016, 06:13 PM #378
I-Mezzo Incognito Anonymous
 
(09-10-2016, 04:03 PM)NODOOM Wrote:  Update:

Just had today's blood tests results.

Platelets are at 290,000. Sodium level is a little bit low at 20. But not excessively low.

Although I am not feeling well they are suggesting I could be discharged to go home.

The not feeling well will not change if I am home or here. If I am home I can continue my alternative treatment. That may make me feel better.

I will keep you all updated as to tow hat happens later.

I am with you on this Nigel. Your not feeling well does not have to do with the place you are in. Yes, of course, there are doctors and nurses running around more in the hospital, but I can not get other than the impression that being at home will at least keep your mind a bit off all that care over there, with vibes almost aimed at making it as easy as possible for you to what they believe is inevitably coming.

Of course, I know it is not a key to guaranteed succes, but at least at home you don't have those vibes and can follow your own rules and schedule. So in that respect chosing home would also be my best choice.

What is very encouraging is that your platelet level is that high and from the 300.000 earlier hardly has changed. If you combine that with the sodium level not dropping further, you could say that those key factors give more hope again and reason to fight more (if that is even possible.)

I admire your mind Nigel, your updating, your will to beat this. In my book you are the true hero in this and an example for many. Showing us not to give up, ever, no matter how dark times seem and find alternative ways to get back on top of things. That attitude deserves our utmost respect and strenghtens us in the believe that any bad and life threatening situation can be overcome.

So in that light, thank you for all that you are and do. You are the best example anyone can get. I am raising my Heineken to you. Cheers mate.

Will check back again later. Stay safe and you know Nigel, still wanting to see that wheelie in the future. But please, take your time!
09-10-2016, 06:15 PM #379
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Hello Nigel,

I am a defector from the Other site ..... I always liked your posts there as NODOOM, was horrified at the news a month ago, and have been praying for and thinking of you daily ever since.
I was so bloody mad when the threads disappeared. I've HAD it with that site. Tracked you down here, and have just registered!

There is nothing I can say, and to tell you to 'fight' would be redundant, you *have* been fighting this the whole time, it's your body that's weak, not your inner strength. I just wish you no pain, and a miraculous recovery, and I keep talking to God about you.

NB, no, none of us can have great weekends, knowing you're in hospital in pain!

Love ya.
09-10-2016, 06:22 PM #380
Octo Mother Superior
Posts:43,370 Threads:1,483 Joined:Feb 2011
You're all welcome here. You're among friends
09-10-2016, 06:27 PM #381
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-10-2016, 06:15 PM)Arcturian Wrote:  Hello Nigel,

I am a defector from the Other site ..... I always liked your posts there as NODOOM, was horrified at the news a month ago, and have been praying for and thinking of you daily ever since.
I was so bloody mad when the threads disappeared. I've HAD it with that site. Tracked you down here, and have just registered!

There is nothing I can say, and to tell you to 'fight' would be redundant, you *have* been fighting this the whole time, it's your body that's weak, not your inner strength. I just wish you no pain, and a miraculous recovery, and I keep talking to God about you.

NB, no, none of us can have great weekends, knowing you're in hospital in pain!

Love ya.

I think a lot of the decent people from the other site have had it after that last escapade. They really showed their true colors in that.

It is nice you have found yourself here, bit of shrewd detective work on your art there.

You will find this site very different. Much more friendly without all the hatred. I found KB a number of years ago and have enjoyed my time here. You will however find it much quieter, I guess that's due to there not being all that hatred and bullshit. But it is a good site and you will find many nice people here.

Thank you for those kind words and for the prayers they are very much appreciated.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 06:28 PM #382
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-10-2016, 06:22 PM)Octo Wrote:  You're all welcome here. You're among friends

yup.gif

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 07:06 PM #383
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Thank you Nigel (and Octo), and in fact I am happy you led us here, I had never heard of it and it looks great. 'Quieter' is fine, yes, most of the noise on that other site is the sound of baboons screaming and snakes hissing! When I saw all threads with your name in had been wiped, I tried to post about it, but your name or ID meant an instaban! I can get round bans, but that wasn't the point - it was disgusting, I want nothing more to do with them.

I so wish we could do something. I'm at the other end of England and broke, otherwise I'd visit you. (I used to live in S. London, and know Woolwich).
You are better off in hospital at the moment than the stress of having to keep adjusting to home, hospital, home, hospital; if your sodium levels plummet again, they can monitor you, rather than you suddenly finding yourself lying on the floor.

I've had many nasty things to deal with in my life, come close to death several times (I nearly died n childbirth, and again with kidney disease, plus other life horrors), and I'm painfully aware that no matter how sympathetic and supportive we are, YOU are the one going through it, and although being surrounded in the ethers by love and concern is a heck of a lot better than being spat on and abandoned, it doesn't solve the problem, does it? But at least know that we *are* here, and you're on our minds all the time.
09-10-2016, 07:23 PM #384
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-10-2016, 07:06 PM)Arcturian Wrote:  Thank you Nigel (and Octo), and in fact I am happy you led us here, I had never heard of it and it looks great. 'Quieter' is fine, yes, most of the noise on that other site is the sound of baboons screaming and snakes hissing! When I saw all threads with your name in had been wiped, I tried to post about it, but your name or ID meant an instaban! I can get round bans, but that wasn't the point - it was disgusting, I want nothing more to do with them.

I so wish we could do something. I'm at the other end of England and broke, otherwise I'd visit you. (I used to live in S. London, and know Woolwich).
You are better off in hospital at the moment than the stress of having to keep adjusting to home, hospital, home, hospital; if your sodium levels plummet again, they can monitor you, rather than you suddenly finding yourself lying on the floor.

I've had many nasty things to deal with in my life, come close to death several times (I nearly died n childbirth, and again with kidney disease, plus other life horrors), and I'm painfully aware that no matter how sympathetic and supportive we are, YOU are the one going through it, and although being surrounded in the ethers by love and concern is a heck of a lot better than being spat on and abandoned, it doesn't solve the problem, does it? But at least know that we *are* here, and you're on our minds all the time.

Yes you are absolutely correct on the danger of sodium levels. I know immediately when they have dropped due to the spaced out confused state my mind gets in. It is not a pleasant feeling i can tell you. The further they drop the more confused I become and the more dizzy and spaced out I feel.

Hopefully this will improve by Monday and then I will be happy to go home. I have a disabled electric scooter waiting to be delivered but have not been at home to take delivery of yet. This will make me at least mobile thereby increasing my quality of life.

I am happy to see it is not an issue the site being quiet. And yes there are not the "Baboons and snakes" on here and that makes it worth it.

Looks like you have had your share of dangerous illness but managed to pull through each time. The support I get from good people like yourself does make a big difference in my moral and I am sure helps toward my recovery.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 08:19 PM #385
Octo Mother Superior
Posts:43,370 Threads:1,483 Joined:Feb 2011
We appreciate the fact that we are all grown ups and can behave accordingly. We don't do drama or trolling and like to keep it that way


barman.gif
09-10-2016, 08:47 PM #386
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-10-2016, 07:23 PM)NODOOM Wrote:  Yes you are absolutely correct on the danger of sodium levels. I know immediately when they have dropped due to the spaced out confused state my mind gets in. It is not a pleasant feeling i can tell you. The further they drop the more confused I become and the more dizzy and spaced out I feel.

Hopefully this will improve by Monday and then I will be happy to go home. I have a disabled electric scooter waiting to be delivered but have not been at home to take delivery of yet. This will make me at least mobile thereby increasing my quality of life.

I am happy to see it is not an issue the site being quiet. And yes there are not the "Baboons and snakes" on here and that makes it worth it.

Looks like you have had your share of dangerous illness but managed to pull through each time. The support I get from good people like yourself does make a big difference in my moral and I am sure helps toward my recovery.

The main thing when you go home is that you are able to check your sodium level and have it under control so it remains stable and then prevent the wheezing and rattling and phlegm with blood.

A bit of online research got me this:

What Causes Your Sodium Levels to Drop?

Function of Sodium

Sodium plays a key role in your body function. It helps to maintain normal blood pressure, regulate your body's fluid balance, support the work of your muscles and nerves and maintain normal blood pressure. Sodium is an electrolyte that helps to regulate water levels in your cells. According to MayoClinic.com, normal blood plasma contains between 136 and 145 milliequivalents per liter (mEq/L) of sodium. When your sodium level falls below 135 mEq/L, hyponatremia occurs.

-50%
more here:
http://www.livestrong.com/article/205432...s-to-drop/

What to Do If You Have Low Sodium Levels?

Low sodium levels, or hyponatremia, can lead to confusion, a coma or even death. It is the most common electrolyte disorder in the United States, according to the University of Maryland Medical Center. Low sodium levels must be treated promptly to avoid life-threatening complications. In addition to treating the low sodium level, your healthcare provider will find the cause of the low sodium levels and treat that condition as well.

-50%
more here:
http://www.livestrong.com/article/461032...um-levels/

Have your doctors prescribed you anything particular regarding sodium?
09-10-2016, 08:57 PM #387
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Hello again Nigel,
Re, my post above, you said:
"Looks like you have had your share of dangerous illness but managed to pull through each time."

Yes, I have fought serious illness, and I understand your situation. Twice I was so close to death from kidney disease that the room around me disappeared, and I saw the tunnel! It was blacker than the deepest black that you can think of. It seemed to draw me into it, but I knew instinctively that if I went down it, I wouldn't come back. Not that death is anything to be feared, and when my time comes, I'll welcome it. But I didn't want to leave right then, I had places I wanted to go and things to do.
I was being treated at Kings College hospital in London, and had to undergo horrible tests, they inject dye into your veins, etc, not a lot of fun. But I just wasn't getting better.
The doctor in charge of my case looked so sombre at my test results, that I said shakily: "How long have I got, then? Just tell me, I can take it."

Instead of answering, he came round from his desk, knelt down in front of me, and took both my hands in his. He had tears in his eyes. (This was more frightening to me, Nigel, than anything he could possibly have said! :)
He said: "I don't want you to worry about anything. Just go home, live your life, and if at any time, day or night, you feel bad, I want you to just come straight here, OK? You don't need to go to reception, just come straight up to my ward. Any time."

I could tell that he thought I *would* feel that ill!
I resolved right there and then that I was never going back. If I died, I died. They were good people, doing the best they could; I was just sick of all the to-and-fro-ing from hospital. I'd had enough. So I never went back.
I had a couple of times when I was so ill that I *knew* I was dying. But each time, by the grace of God, I recovered. I took great care with what I ate and drank, I meditated and read spiritual books. My unwell periods got less and less frequent over the next year. Within 3 years, I was completely, 100% better.
I looked it up later. At my stage of renal failure, the mortality rate was NINETY EIGHT PERCENT!!

Sometimes I think it'd be fun to track the doctor down and go and see him, decades later and blooming with health, to say, 'Hi! Remember me?' But I'm too nice to want to cause people heart attacks, lol. :o)

So you see, I know from direct experience that the odds don't matter. Ultimately it's up to God, the spirit world; if it's our time to leave, then it just is. But we have the freedom to try for an extension, to say, 'No, I want to be here a bit longer.' Always worth fighting, because you never know!
09-10-2016, 09:19 PM #388
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-10-2016, 08:47 PM)MadameConcorde Wrote:  
(09-10-2016, 07:23 PM)NODOOM Wrote:  Yes you are absolutely correct on the danger of sodium levels. I know immediately when they have dropped due to the spaced out confused state my mind gets in. It is not a pleasant feeling i can tell you. The further they drop the more confused I become and the more dizzy and spaced out I feel.

Hopefully this will improve by Monday and then I will be happy to go home. I have a disabled electric scooter waiting to be delivered but have not been at home to take delivery of yet. This will make me at least mobile thereby increasing my quality of life.

I am happy to see it is not an issue the site being quiet. And yes there are not the "Baboons and snakes" on here and that makes it worth it.

Looks like you have had your share of dangerous illness but managed to pull through each time. The support I get from good people like yourself does make a big difference in my moral and I am sure helps toward my recovery.

The main thing when you go home is that you are able to check your sodium level and have it under control so it remains stable and then prevent the wheezing and rattling and phlegm with blood.

A bit of online research got me this:

What Causes Your Sodium Levels to Drop?

Function of Sodium

Sodium plays a key role in your body function. It helps to maintain normal blood pressure, regulate your body's fluid balance, support the work of your muscles and nerves and maintain normal blood pressure. Sodium is an electrolyte that helps to regulate water levels in your cells. According to MayoClinic.com, normal blood plasma contains between 136 and 145 milliequivalents per liter (mEq/L) of sodium. When your sodium level falls below 135 mEq/L, hyponatremia occurs.

-50%
more here:
http://www.livestrong.com/article/205432...s-to-drop/

What to Do If You Have Low Sodium Levels?

Low sodium levels, or hyponatremia, can lead to confusion, a coma or even death. It is the most common electrolyte disorder in the United States, according to the University of Maryland Medical Center. Low sodium levels must be treated promptly to avoid life-threatening complications. In addition to treating the low sodium level, your healthcare provider will find the cause of the low sodium levels and treat that condition as well.

-50%
more here:
http://www.livestrong.com/article/461032...um-levels/

Have your doctors prescribed you anything particular regarding sodium?

Yes those are the symptoms I get. Confusion, sweating and headache.

The doctor has prescribed some tablet to help increase the sodium level. I take this every morning only.

Before I had difficulty getting the platelets up. Now that is ok and now this problem. It's one thing after another. Frustrating to say the least.

Thank you for the research you did.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 09:35 PM #389
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-10-2016, 08:57 PM)Arcturian Wrote:  Hello again Nigel,
Re, my post above, you said:
"Looks like you have had your share of dangerous illness but managed to pull through each time."

Yes, I have fought serious illness, and I understand your situation. Twice I was so close to death from kidney disease that the room around me disappeared, and I saw the tunnel! It was blacker than the deepest black that you can think of. It seemed to draw me into it, but I knew instinctively that if I went down it, I wouldn't come back. Not that death is anything to be feared, and when my time comes, I'll welcome it. But I didn't want to leave right then, I had places I wanted to go and things to do.
I was being treated at Kings College hospital in London, and had to undergo horrible tests, they inject dye into your veins, etc, not a lot of fun. But I just wasn't getting better.
The doctor in charge of my case looked so sombre at my test results, that I said shakily: "How long have I got, then? Just tell me, I can take it."

Instead of answering, he came round from his desk, knelt down in front of me, and took both my hands in his. He had tears in his eyes. (This was more frightening to me, Nigel, than anything he could possibly have said! :)
He said: "I don't want you to worry about anything. Just go home, live your life, and if at any time, day or night, you feel bad, I want you to just come straight here, OK? You don't need to go to reception, just come straight up to my ward. Any time."

I could tell that he thought I *would* feel that ill!
I resolved right there and then that I was never going back. If I died, I died. They were good people, doing the best they could; I was just sick of all the to-and-fro-ing from hospital. I'd had enough. So I never went back.
I had a couple of times when I was so ill that I *knew* I was dying. But each time, by the grace of God, I recovered. I took great care with what I ate and drank, I meditated and read spiritual books. My unwell periods got less and less frequent over the next year. Within 3 years, I was completely, 100% better.
I looked it up later. At my stage of renal failure, the mortality rate was NINETY EIGHT PERCENT!!

Sometimes I think it'd be fun to track the doctor down and go and see him, decades later and blooming with health, to say, 'Hi! Remember me?' But I'm too nice to want to cause people heart attacks, lol. :o)

So you see, I know from direct experience that the odds don't matter. Ultimately it's up to God, the spirit world; if it's our time to leave, then it just is. But we have the freedom to try for an extension, to say, 'No, I want to be here a bit longer.' Always worth fighting, because you never know!

At the beginning of all this I was given just 3 days to live unless they gave me Chemotherapy there and then. I had no choice but to take the chance of that and even they were not sure if it could help as it was so late. But I did the Chemo and here we are 1 month later still alive. So who knows maybe it's not my time yet.

The prognosis now has only changed to 1 month. But we will see about that. I'm not going to go without a fight.

I am trying different alternative treatments at the moment, after all it would seem I have nothing to lose.

You are certainly the proof that miracles can happen and you can contrary to what the doctors say survive even when there is little or no chance. That is an inspiration to me.

I was so eager to go home but at the end of the day knowing how dangerous low sodium levels can be and by the way I am feeling with this confusion and spaced out feeling it was the sensible thing to remain here and see how things go for the next couple of days.

All the best to you my friend.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-10-2016, 09:50 PM #390
Octo Mother Superior
Posts:43,370 Threads:1,483 Joined:Feb 2011
Our old friend and member Bohica's wife was diagnosed with cancer and given limited time, 6 months or so if I remember correctly. Anyway, that was years ago and she proved her doctors wrong many times. She's still alive.

It's possible to defy all odds and you do have a bigger support group than most people.



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