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Prayers For Nigel
09-13-2016, 10:55 PM #451
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-13-2016, 10:22 PM)NODOOM Wrote:  
(09-13-2016, 10:14 PM)MadameConcorde Wrote:  Hi Nigel

How are you feeling this evening?
Have your doctors said anything new?

I hope you had a restful day with no mishaps.
Checking to see how you are doing.

Feeling much the same not at all good. Until they can get the sodium up then this is how I will feel!

I wish they could find the solution to this and find it fast.

At the moment it is taking what energy and strength I have left.

I so much wish they would do something about the sodium.

You have to tell them everything about your condition and then taking in no nutrients is not helping either.

This has got nothing to do with chemo or no chemo. In fact if you had done the chemo it would have made everything worse.

They need to act fast, as you said.

I wish they would do something!!
09-13-2016, 11:00 PM #452
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-13-2016, 10:55 PM)MadameConcorde Wrote:  
(09-13-2016, 10:22 PM)NODOOM Wrote:  
(09-13-2016, 10:14 PM)MadameConcorde Wrote:  Hi Nigel

How are you feeling this evening?
Have your doctors said anything new?

I hope you had a restful day with no mishaps.
Checking to see how you are doing.

Feeling much the same not at all good. Until they can get the sodium up then this is how I will feel!

I wish they could find the solution to this and find it fast.

At the moment it is taking what energy and strength I have left.

I so much wish they would do something about the sodium.

You have to tell them everything about your condition and then taking in no nutrients is not helping either.

This has got nothing to do with chemo or no chemo. In fact if you had done the chemo it would have made everything worse.

They need to act fast, as you said.

I wish they would do something!!

I have told them everything but they just give me that sympathetic look. So far this new medicine that they are giving me to help with the sodium has not made any difference. I have to take it every 2 days.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-13-2016, 11:10 PM #453
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
As MadameConcorde said, if you had taken the chemo poison, you'd be feeling even worse, probably a thousand times worse! I am glad you chose not to, after that first lot when you really had no option.
Every single decision you've made since the start of this, is exactly what I would have done, too.

If you can't eat, I wonder if you can drink? Anything. (Well, not Smirnoff). chuckle.gif
Even fruit juice or vegetable juice would help you feel better. We ALL feel crap after not eating for over a day!
Still thinking of you.
09-13-2016, 11:13 PM #454
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-13-2016, 11:10 PM)Arcturian Wrote:  As MadameConcorde said, if you had taken the chemo poison, you'd be feeling even worse, probably a thousand times worse! I am glad you chose not to, after that first lot when you really had no option.
Every single decision you've made since the start of this, is exactly what I would have done, too.

If you can't eat, I wonder if you can drink? Anything. (Well, not Smirnoff). chuckle.gif
Even fruit juice or vegetable juice would help you feel better. We ALL feel crap after not eating for over a day!
Still thinking of you.

Not drinking enough but I am managing some.

Thanks for your thoughts.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-13-2016, 11:14 PM #455
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-13-2016, 11:00 PM)NODOOM Wrote:  I have told them everything but they just give me that sympathetic look. So far this new medicine that they are giving me to help with the sodium has not made any difference. I have to take it every 2 days.

This web page is talking about several things:

Saline water. You can make this at home and it will quickly replace your lost sodium in your body. Just have a glass of water with a pinch of salt, mix, and then drink.

Coconut water. This contains a lot of electrolytes and is good for dehydration. It contains sodium, magnesium and a lot of potassium.

A cup of vegetable juice has 500mg of sodium. Add shredded cardoon, carrots and celery in a blender added with a pinch of salt to make a tasty juice.

http://www.wikihow.com/Raise-Your-Blood-Sodium-Level

Would you be able to get someone to bring you these?

They are all liquid, no food intake. Eating would help but you said you cannot eat any food so this does not help.

Always trying to look for information.
One tablet every two days is not enough. Is there a specialty natural doctor anywhere whom you might know? Maybe an ayurvedic doctor?

I was once treated by an ayurvedic doctor a long time ago. He saved me from a wasp sting at an outdoor party. I was choking from the wasp sting. This was a wasp not a bee. There was sweet food at the party with wasps all around. It was during the Summer. This was in the English countryside with affluent Indians. I am so happy the Mr Doctor was there and he took care of me right on the spot. I will always remember him. I am terribly allergic to wasps.

Sometimes Eastern medicine has better solutions than Western doctors.
09-14-2016, 12:30 AM #456
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-13-2016, 11:14 PM)MadameConcorde Wrote:  
(09-13-2016, 11:00 PM)NODOOM Wrote:  I have told them everything but they just give me that sympathetic look. So far this new medicine that they are giving me to help with the sodium has not made any difference. I have to take it every 2 days.

This web page is talking about several things:

Saline water. You can make this at home and it will quickly replace your lost sodium in your body. Just have a glass of water with a pinch of salt, mix, and then drink.

Coconut water. This contains a lot of electrolytes and is good for dehydration. It contains sodium, magnesium and a lot of potassium.

A cup of vegetable juice has 500mg of sodium. Add shredded cardoon, carrots and celery in a blender added with a pinch of salt to make a tasty juice.

http://www.wikihow.com/Raise-Your-Blood-Sodium-Level

Would you be able to get someone to bring you these?

They are all liquid, no food intake. Eating would help but you said you cannot eat any food so this does not help.

Always trying to look for information.
One tablet every two days is not enough. Is there a specialty natural doctor anywhere whom you might know? Maybe an ayurvedic doctor?

I was once treated by an ayurvedic doctor a long time ago. He saved me from a wasp sting at an outdoor party. I was choking from the wasp sting. This was a wasp not a bee. There was sweet food at the party with wasps all around. It was during the Summer. This was in the English countryside with affluent Indians. I am so happy the Mr Doctor was there and he took care of me right on the spot. I will always remember him. I am terribly allergic to wasps.

Sometimes Eastern medicine has better solutions than Western doctors.

Yeah I read about coconut water before. I will ask a friend to bring for me. I have always said ayurvedic medicine is to easily passed of without enough research. Nature can provide us everything but greed of "Big Pharma" can not make money of off natural products. Enough said.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 09:45 AM #457
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

I-Mezzo Show this Post
09-14-2016, 10:42 AM #458
I-Mezzo Incognito Anonymous
 
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

At least the sleep was good Nigel. Hope they find out what causes that pain. Could well be a muscle pain, from all the laying there and might not at all be related to the cancer. Go from there.

Wishing you a better day today and sending positive thoughts from across The North Sea.
09-14-2016, 11:03 AM #459
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

Hi Nigel

Thank you for your update.

It seems that your doctors are really not being of much use. All I see is that whenever a new problem arises they want to give you pain killers or they just sympathize instead of investigating where the problem comes from which is what their job is really about.

Can't they take you in for a MRI instead of talking about morphine? Morphine is just to ease the pain. Have they tried paracetamol IV to relieve the pain rather than morphine?

They've got to have sophisticated equipment that will tell them where and what. I have been put through all that special equipment after an accident. They give you an injection with a "nuclear" product that will brighten some of the areas that are affected in different shades and colours during the MRI and then the product goes away in the urine some hours later by drinking a lot of water. I have been put through this two times in my life. They knew exactly what was wrong both times.

I am surprised they don't do this.

The problem with your leg should be investigated asap. Maybe it has something to do with blood circulation and heart condition related. I am not sure. I will see if I can find something online with the description you give just to have it figured out.

They are lucky they don't have me as a patient. I would storm and revolutionize the place or I would manage to have me moved to a different hospital with an efficient team.

Easier said than done? Well they don't seem to be doing much and this is what worries me the most.

I can't have a good day knowing what you are going through.

I wish I could be there to help with some practical action at least have a good talk with the chief doctor in your ward see what they are about.

This is 2016 not the 1950's. They have no excuse.

They need to do something!

gaah.gif
09-14-2016, 11:29 AM #460
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
Neuropathic Pain

What are the symptoms?

Neuropathic pain feels different from most other types of pain. It is often described as sharp, stabbing, or burning. It may feel like an electric shock. It may be worse at night. The pain may be constant after a stroke or if you have diabetic neuropathy of the feet and legs. The pain may come and go if you have trigeminal neuralgia (nerve pain in the face, teeth, mouth, or nasal cavity) or sciatic pain (a form of low back pain that runs down your leg, causing pain, numbness, or tingling in the leg).

more here:
http://www.summitmedicalgroup.com/librar...thic_pain/

Here is some of what they say which I consider important.

Try hard to avoid taking narcotic pain medicine for neuropathic pain. As your body gets used to the medicine, you may need higher and higher doses to get the same effect. This can become a serious long-term problem if you are taking the medicine for a chronic pain condition. Narcotic medicine may also cause sleepiness and other unpleasant side effects, such as constipation. In high doses the medicine may cause trouble breathing and even death, especially if combined with alcohol. If you do start taking narcotic pain medicine, your healthcare provider may ask you to sign an agreement about how you will and won’t use this addictive medicine.
09-14-2016, 11:36 AM #461
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
As simple as it seems, I read that a glass of milk with turmeric powder in it will help.

Here:
http://patient.info/forums/discuss/sever...egs-258259
09-14-2016, 04:32 PM #462
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
I wish we could take your pain away. :(
Can't feel happy knowing you're feeling weak and in pain.
09-14-2016, 04:40 PM #463
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 10:42 AM)I-Mezzo Wrote:  
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

At least the sleep was good Nigel. Hope they find out what causes that pain. Could well be a muscle pain, from all the laying there and might not at all be related to the cancer. Go from there.

Wishing you a better day today and sending positive thoughts from across The North Sea.

I think it's more than muscular pain but who am I to know.

So far I am still feeling better than the last few days .

Thank you for your continued thoughts and best wishes my friend they are always much appreciated.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 04:46 PM #464
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 11:03 AM)MadameConcorde Wrote:  
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

Hi Nigel

Thank you for your update.

It seems that your doctors are really not being of much use. All I see is that whenever a new problem arises they want to give you pain killers or they just sympathize instead of investigating where the problem comes from which is what their job is really about.

Can't they take you in for a MRI instead of talking about morphine? Morphine is just to ease the pain. Have they tried paracetamol IV to relieve the pain rather than morphine?

They've got to have sophisticated equipment that will tell them where and what. I have been put through all that special equipment after an accident. They give you an injection with a "nuclear" product that will brighten some of the areas that are affected in different shades and colours during the MRI and then the product goes away in the urine some hours later by drinking a lot of water. I have been put through this two times in my life. They knew exactly what was wrong both times.

I am surprised they don't do this.

The problem with your leg should be investigated asap. Maybe it has something to do with blood circulation and heart condition related. I am not sure. I will see if I can find something online with the description you give just to have it figured out.

They are lucky they don't have me as a patient. I would storm and revolutionize the place or I would manage to have me moved to a different hospital with an efficient team.

Easier said than done? Well they don't seem to be doing much and this is what worries me the most.

I can't have a good day knowing what you are going through.

I wish I could be there to help with some practical action at least have a good talk with the chief doctor in your ward see what they are about.

This is 2016 not the 1950's. They have no excuse.

They need to do something!

gaah.gif

Well I am currently waiting on the doctors visit. Then I am going to demand that they investigate the problem not just give me morphine.

I think in reality they have given up much hope on any change in the prognosis so have resigned themselves to just dealing with the pain levels. Well I certainly have not given up.

Will let you know more after they visit me.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 04:53 PM #465
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 11:29 AM)MadameConcorde Wrote:  Neuropathic Pain

What are the symptoms?

Neuropathic pain feels different from most other types of pain. It is often described as sharp, stabbing, or burning. It may feel like an electric shock. It may be worse at night. The pain may be constant after a stroke or if you have diabetic neuropathy of the feet and legs. The pain may come and go if you have trigeminal neuralgia (nerve pain in the face, teeth, mouth, or nasal cavity) or sciatic pain (a form of low back pain that runs down your leg, causing pain, numbness, or tingling in the leg).

more here:
http://www.summitmedicalgroup.com/librar...thic_pain/

Here is some of what they say which I consider important.

Try hard to avoid taking narcotic pain medicine for neuropathic pain. As your body gets used to the medicine, you may need higher and higher doses to get the same effect. This can become a serious long-term problem if you are taking the medicine for a chronic pain condition. Narcotic medicine may also cause sleepiness and other unpleasant side effects, such as constipation. In high doses the medicine may cause trouble breathing and even death, especially if combined with alcohol. If you do start taking narcotic pain medicine, your healthcare provider may ask you to sign an agreement about how you will and won’t use this addictive medicine.

Yes I am trying not to take so much morphine and they keep waiting to increase it.

Its a very difficult situation at the moment. Currently the dosage they have prescribed me is 100mg 3x daily. With other morphine IV, oral or other injection to the muscle any time required.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014




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