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Prayers For Nigel
09-14-2016, 04:32 PM #451
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
I wish we could take your pain away. :(
Can't feel happy knowing you're feeling weak and in pain.
09-14-2016, 04:40 PM #452
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 10:42 AM)I-Mezzo Wrote:  
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

At least the sleep was good Nigel. Hope they find out what causes that pain. Could well be a muscle pain, from all the laying there and might not at all be related to the cancer. Go from there.

Wishing you a better day today and sending positive thoughts from across The North Sea.

I think it's more than muscular pain but who am I to know.

So far I am still feeling better than the last few days .

Thank you for your continued thoughts and best wishes my friend they are always much appreciated.
09-14-2016, 04:46 PM #453
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 11:03 AM)MadameConcorde Wrote:  
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

Hi Nigel

Thank you for your update.

It seems that your doctors are really not being of much use. All I see is that whenever a new problem arises they want to give you pain killers or they just sympathize instead of investigating where the problem comes from which is what their job is really about.

Can't they take you in for a MRI instead of talking about morphine? Morphine is just to ease the pain. Have they tried paracetamol IV to relieve the pain rather than morphine?

They've got to have sophisticated equipment that will tell them where and what. I have been put through all that special equipment after an accident. They give you an injection with a "nuclear" product that will brighten some of the areas that are affected in different shades and colours during the MRI and then the product goes away in the urine some hours later by drinking a lot of water. I have been put through this two times in my life. They knew exactly what was wrong both times.

I am surprised they don't do this.

The problem with your leg should be investigated asap. Maybe it has something to do with blood circulation and heart condition related. I am not sure. I will see if I can find something online with the description you give just to have it figured out.

They are lucky they don't have me as a patient. I would storm and revolutionize the place or I would manage to have me moved to a different hospital with an efficient team.

Easier said than done? Well they don't seem to be doing much and this is what worries me the most.

I can't have a good day knowing what you are going through.

I wish I could be there to help with some practical action at least have a good talk with the chief doctor in your ward see what they are about.

This is 2016 not the 1950's. They have no excuse.

They need to do something!

gaah.gif

Well I am currently waiting on the doctors visit. Then I am going to demand that they investigate the problem not just give me morphine.

I think in reality they have given up much hope on any change in the prognosis so have resigned themselves to just dealing with the pain levels. Well I certainly have not given up.

Will let you know more after they visit me.
09-14-2016, 04:53 PM #454
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 11:29 AM)MadameConcorde Wrote:  Neuropathic Pain

What are the symptoms?

Neuropathic pain feels different from most other types of pain. It is often described as sharp, stabbing, or burning. It may feel like an electric shock. It may be worse at night. The pain may be constant after a stroke or if you have diabetic neuropathy of the feet and legs. The pain may come and go if you have trigeminal neuralgia (nerve pain in the face, teeth, mouth, or nasal cavity) or sciatic pain (a form of low back pain that runs down your leg, causing pain, numbness, or tingling in the leg).

more here:
http://www.summitmedicalgroup.com/librar...thic_pain/

Here is some of what they say which I consider important.

Try hard to avoid taking narcotic pain medicine for neuropathic pain. As your body gets used to the medicine, you may need higher and higher doses to get the same effect. This can become a serious long-term problem if you are taking the medicine for a chronic pain condition. Narcotic medicine may also cause sleepiness and other unpleasant side effects, such as constipation. In high doses the medicine may cause trouble breathing and even death, especially if combined with alcohol. If you do start taking narcotic pain medicine, your healthcare provider may ask you to sign an agreement about how you will and won’t use this addictive medicine.

Yes I am trying not to take so much morphine and they keep waiting to increase it.

Its a very difficult situation at the moment. Currently the dosage they have prescribed me is 100mg 3x daily. With other morphine IV, oral or other injection to the muscle any time required.
09-14-2016, 04:56 PM #455
MadameConcorde Member
Posts:100 Threads:0 Joined:Sep 2016
(09-14-2016, 04:46 PM)NODOOM Wrote:  
(09-14-2016, 11:03 AM)MadameConcorde Wrote:  
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

Hi Nigel

Thank you for your update.

It seems that your doctors are really not being of much use. All I see is that whenever a new problem arises they want to give you pain killers or they just sympathize instead of investigating where the problem comes from which is what their job is really about.

Can't they take you in for a MRI instead of talking about morphine? Morphine is just to ease the pain. Have they tried paracetamol IV to relieve the pain rather than morphine?

They've got to have sophisticated equipment that will tell them where and what. I have been put through all that special equipment after an accident. They give you an injection with a "nuclear" product that will brighten some of the areas that are affected in different shades and colours during the MRI and then the product goes away in the urine some hours later by drinking a lot of water. I have been put through this two times in my life. They knew exactly what was wrong both times.

I am surprised they don't do this.

The problem with your leg should be investigated asap. Maybe it has something to do with blood circulation and heart condition related. I am not sure. I will see if I can find something online with the description you give just to have it figured out.

They are lucky they don't have me as a patient. I would storm and revolutionize the place or I would manage to have me moved to a different hospital with an efficient team.

Easier said than done? Well they don't seem to be doing much and this is what worries me the most.

I can't have a good day knowing what you are going through.

I wish I could be there to help with some practical action at least have a good talk with the chief doctor in your ward see what they are about.

This is 2016 not the 1950's. They have no excuse.

They need to do something!

gaah.gif

Well I am currently waiting on the doctors visit. Then I am going to demand that they investigate the problem not just give me morphine.

I think in reality they have given up much hope on any change in the prognosis so have resigned themselves to just dealing with the pain levels. Well I certainly have not given up.

Will let you know more after they visit me.

Many thanks for your update.
Waiting to hear back after you see the doctors.

You are 100% right. Never give up.
Show them.
09-14-2016, 04:59 PM #456
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 11:36 AM)MadameConcorde Wrote:  As simple as it seems, I read that a glass of milk with turmeric powder in it will help.

Here:
http://patient.info/forums/discuss/sever...egs-258259

Well I have organic turmeric powder plus root so easy to do. I will try this. Thanks.
09-14-2016, 05:00 PM #457
UniqueStranger Art in my heart
Posts:14,889 Threads:444 Joined:Jun 2012
(09-13-2016, 11:13 PM)NODOOM Wrote:  
(09-13-2016, 11:10 PM)Arcturian Wrote:  As MadameConcorde said, if you had taken the chemo poison, you'd be feeling even worse, probably a thousand times worse! I am glad you chose not to, after that first lot when you really had no option.
Every single decision you've made since the start of this, is exactly what I would have done, too.

If you can't eat, I wonder if you can drink? Anything. (Well, not Smirnoff). chuckle.gif
Even fruit juice or vegetable juice would help you feel better. We ALL feel crap after not eating for over a day!
Still thinking of you.

Not drinking enough but I am managing some.

Thanks for your thoughts.

Good morning Nigel. You must drink lots of water to keep hydrated. I know when I don't drink enough water all sorts of muscle cramping starts for me. If you can sip it throughout the day, instead of large amounts at once, it is by far easier to do.

Now not getting enough nutrients is another problem. Can you ask for nutritional drinks/shakes and/or yogurt with fruit to take throughout the day?

Also, if you are taking alternative medicinal remedies, there is no way to know how it is reacting with your current medication and treatments. So little research has been done in this area.

I hope you are able to re-hydrate and the muscle cramping subsides...that is, if dehydration is what is actually causing it.

You have to be your own health advocate and keep on the health professionals until they do something or start using their brains and the science they have learned so far to think beyond their boxes.
09-14-2016, 05:01 PM #458
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 04:32 PM)Arcturian Wrote:  I wish we could take your pain away. :(
Can't feel happy knowing you're feeling weak and in pain.

Thank you my friend.
09-14-2016, 05:03 PM #459
S27 <3
Posts:82 Threads:0 Joined:Sep 2016
Hi Nigel,

I wasn't able to access the forum last night and was relieved to get on this morning and see that you slept well. I'm sorry to hear about the pain you are now experiencing. : (

How is your sodium level now?

Just wanted you to know that you are still (and always) in my thoughts and prayers. I hope that you have a good day (as best you can) and that they get to the bottom of your leg pain.

Also, Grumpier from the other forum was asking about you and wanted to send well wishes. : )

Much Love!

İmage
09-14-2016, 05:04 PM #460
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 05:00 PM)UniqueStranger Wrote:  
(09-13-2016, 11:13 PM)NODOOM Wrote:  
(09-13-2016, 11:10 PM)Arcturian Wrote:  As MadameConcorde said, if you had taken the chemo poison, you'd be feeling even worse, probably a thousand times worse! I am glad you chose not to, after that first lot when you really had no option.
Every single decision you've made since the start of this, is exactly what I would have done, too.

If you can't eat, I wonder if you can drink? Anything. (Well, not Smirnoff). chuckle.gif
Even fruit juice or vegetable juice would help you feel better. We ALL feel crap after not eating for over a day!
Still thinking of you.

Not drinking enough but I am managing some.

Thanks for your thoughts.

Good morning Nigel. You must drink lots of water to keep hydrated. I know when I don't drink enough water all sorts of muscle cramping starts for me. If you can sip it throughout the day, instead of large amounts at once, it is by far easier to do.

Now not getting enough nutrients is another problem. Can you ask for nutritional drinks/shakes and/or yogurt with fruit to take throughout the day?

Also, if you are taking alternative medicinal remedies, there is no way to know how it is reacting with your current medication and treatments. So little research has been done in this area.

I hope you are able to re-hydrate and the muscle cramping subsides...that is, if dehydration is what is actually causing it.

You have to be your own health advocate and keep on the health professionals until they do something or start using their brains and the science they have learned so far to think beyond their boxes.

I have high protein shakes and yoghurt prescribed so am taking those.

Thanks.
09-14-2016, 05:07 PM #461
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 05:03 PM)S27 Wrote:  Hi Nigel,

I wasn't able to access the forum last night and was relieved to get on this morning and see that you slept well. I'm sorry to hear about the pain you are now experiencing. : (

How is your sodium level now?

Just wanted you to know that you are still (and always) in my thoughts and prayers. I hope that you have a good day (as best you can) and that they get to the bottom of your leg pain.

Also, Grumpier from the other forum was asking about you and wanted to send well wishes. : )

Much Love!

İmage

I am waiting for the doctors to visit then I will know the blood results today. As soon as I know I will be sure to post them on here.

Thanks.
09-14-2016, 06:08 PM #462
Little L Member
Posts:116 Threads:4 Joined:Sep 2016
I hope today is treating you well.

It seems that the doctors are not liking having somebody who actually wishes to make informed decisions about their body....they should be grateful that they have a patient who wants to work WITH them to gain a common goal - but I fear that they just want you to lie there like a sack of spuds and just be a good little quiet patient willing to eat up all the crap they want to throw your way.....can't have us little people trying to elevate ourselves and bruise the docs ego, can we?!

Gah! SO frustrating.

You could be the first properly documented case of a remission involving alternative methods but they are just clipping your wings constantly.

Sending love x
09-14-2016, 06:37 PM #463
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
(09-14-2016, 06:08 PM)Little L Wrote:  I hope today is treating you well.

It seems that the doctors are not liking having somebody who actually wishes to make informed decisions about their body....they should be grateful that they have a patient who wants to work WITH them to gain a common goal - but I fear that they just want you to lie there like a sack of spuds and just be a good little quiet patient willing to eat up all the crap they want to throw your way.....can't have us little people trying to elevate ourselves and bruise the docs ego, can we?!

Gah! SO frustrating.

You could be the first properly documented case of a remission involving alternative methods but they are just clipping your wings constantly.

Sending love x

Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?
09-14-2016, 06:41 PM #464
NODOOM Truthtard
Posts:4,860 Threads:522 Joined:Sep 2012
The doctors have finally turned up. The sodium level is slightly up at 21 a good sign.

They will give me an MRI scan and see what that tells them. They are thinking it is a pinched nerve in the spine.
09-14-2016, 06:48 PM #465
MadameConcorde Member
Posts:100 Threads:0 Joined:Sep 2016
(09-14-2016, 06:37 PM)NODOOM Wrote:  Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif



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