#Login Register


  • 34 Vote(s) - 3.65 Average
Home 


Prayers For Nigel
09-14-2016, 04:56 PM #466
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 04:46 PM)NODOOM Wrote:  
(09-14-2016, 11:03 AM)MadameConcorde Wrote:  
(09-14-2016, 09:45 AM)NODOOM Wrote:  Good morning everyone.

That was a much better sleep last night. I did not wake up with the usual wheezing and rattling. In Fact I didn't wake up until the nurses came on their morning rounds to check my ops. I am not going to comment on how I feel at the moment as I have seen that change very soon after. So I shall wait a couple of hours and see how I feel then.

I do have one new problem that has developed in the last few day's.

I have this pain stretching from my left buttock down the whole of the back side of the leg and into the foot. This pain is so bad that if you just touch it very gently even it feels like a thousand needles pushing into the leg.

I have talked to the doctors about it but they seem to be at a loss as to what is causing it so far and just tell me to ask for morphine when I need it. The morphine is the very thing I am trying to avoid so much of at the moment. It is the cure not the solution.

Wishing everyone a great day.

Hi Nigel

Thank you for your update.

It seems that your doctors are really not being of much use. All I see is that whenever a new problem arises they want to give you pain killers or they just sympathize instead of investigating where the problem comes from which is what their job is really about.

Can't they take you in for a MRI instead of talking about morphine? Morphine is just to ease the pain. Have they tried paracetamol IV to relieve the pain rather than morphine?

They've got to have sophisticated equipment that will tell them where and what. I have been put through all that special equipment after an accident. They give you an injection with a "nuclear" product that will brighten some of the areas that are affected in different shades and colours during the MRI and then the product goes away in the urine some hours later by drinking a lot of water. I have been put through this two times in my life. They knew exactly what was wrong both times.

I am surprised they don't do this.

The problem with your leg should be investigated asap. Maybe it has something to do with blood circulation and heart condition related. I am not sure. I will see if I can find something online with the description you give just to have it figured out.

They are lucky they don't have me as a patient. I would storm and revolutionize the place or I would manage to have me moved to a different hospital with an efficient team.

Easier said than done? Well they don't seem to be doing much and this is what worries me the most.

I can't have a good day knowing what you are going through.

I wish I could be there to help with some practical action at least have a good talk with the chief doctor in your ward see what they are about.

This is 2016 not the 1950's. They have no excuse.

They need to do something!

gaah.gif

Well I am currently waiting on the doctors visit. Then I am going to demand that they investigate the problem not just give me morphine.

I think in reality they have given up much hope on any change in the prognosis so have resigned themselves to just dealing with the pain levels. Well I certainly have not given up.

Will let you know more after they visit me.

Many thanks for your update.
Waiting to hear back after you see the doctors.

You are 100% right. Never give up.
Show them.
09-14-2016, 04:59 PM #467
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 11:36 AM)MadameConcorde Wrote:  As simple as it seems, I read that a glass of milk with turmeric powder in it will help.

Here:
http://patient.info/forums/discuss/sever...egs-258259

Well I have organic turmeric powder plus root so easy to do. I will try this. Thanks.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 05:00 PM #468
UniqueStranger Art in my heart
Posts:15,284 Threads:431 Joined:Jun 2012
(09-13-2016, 11:13 PM)NODOOM Wrote:  
(09-13-2016, 11:10 PM)Arcturian Wrote:  As MadameConcorde said, if you had taken the chemo poison, you'd be feeling even worse, probably a thousand times worse! I am glad you chose not to, after that first lot when you really had no option.
Every single decision you've made since the start of this, is exactly what I would have done, too.

If you can't eat, I wonder if you can drink? Anything. (Well, not Smirnoff). chuckle.gif
Even fruit juice or vegetable juice would help you feel better. We ALL feel crap after not eating for over a day!
Still thinking of you.

Not drinking enough but I am managing some.

Thanks for your thoughts.

Good morning Nigel. You must drink lots of water to keep hydrated. I know when I don't drink enough water all sorts of muscle cramping starts for me. If you can sip it throughout the day, instead of large amounts at once, it is by far easier to do.

Now not getting enough nutrients is another problem. Can you ask for nutritional drinks/shakes and/or yogurt with fruit to take throughout the day?

Also, if you are taking alternative medicinal remedies, there is no way to know how it is reacting with your current medication and treatments. So little research has been done in this area.

I hope you are able to re-hydrate and the muscle cramping subsides...that is, if dehydration is what is actually causing it.

You have to be your own health advocate and keep on the health professionals until they do something or start using their brains and the science they have learned so far to think beyond their boxes.
09-14-2016, 05:01 PM #469
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 04:32 PM)Arcturian Wrote:  I wish we could take your pain away. :(
Can't feel happy knowing you're feeling weak and in pain.

Thank you my friend.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 05:03 PM #470
S27 <3
Posts:82 Threads:0 Joined:Sep 2016
Hi Nigel,

I wasn't able to access the forum last night and was relieved to get on this morning and see that you slept well. I'm sorry to hear about the pain you are now experiencing. : (

How is your sodium level now?

Just wanted you to know that you are still (and always) in my thoughts and prayers. I hope that you have a good day (as best you can) and that they get to the bottom of your leg pain.

Also, Grumpier from the other forum was asking about you and wanted to send well wishes. : )

Much Love!

İmage
09-14-2016, 05:04 PM #471
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 05:00 PM)UniqueStranger Wrote:  
(09-13-2016, 11:13 PM)NODOOM Wrote:  
(09-13-2016, 11:10 PM)Arcturian Wrote:  As MadameConcorde said, if you had taken the chemo poison, you'd be feeling even worse, probably a thousand times worse! I am glad you chose not to, after that first lot when you really had no option.
Every single decision you've made since the start of this, is exactly what I would have done, too.

If you can't eat, I wonder if you can drink? Anything. (Well, not Smirnoff). chuckle.gif
Even fruit juice or vegetable juice would help you feel better. We ALL feel crap after not eating for over a day!
Still thinking of you.

Not drinking enough but I am managing some.

Thanks for your thoughts.

Good morning Nigel. You must drink lots of water to keep hydrated. I know when I don't drink enough water all sorts of muscle cramping starts for me. If you can sip it throughout the day, instead of large amounts at once, it is by far easier to do.

Now not getting enough nutrients is another problem. Can you ask for nutritional drinks/shakes and/or yogurt with fruit to take throughout the day?

Also, if you are taking alternative medicinal remedies, there is no way to know how it is reacting with your current medication and treatments. So little research has been done in this area.

I hope you are able to re-hydrate and the muscle cramping subsides...that is, if dehydration is what is actually causing it.

You have to be your own health advocate and keep on the health professionals until they do something or start using their brains and the science they have learned so far to think beyond their boxes.

I have high protein shakes and yoghurt prescribed so am taking those.

Thanks.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 05:07 PM #472
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 05:03 PM)S27 Wrote:  Hi Nigel,

I wasn't able to access the forum last night and was relieved to get on this morning and see that you slept well. I'm sorry to hear about the pain you are now experiencing. : (

How is your sodium level now?

Just wanted you to know that you are still (and always) in my thoughts and prayers. I hope that you have a good day (as best you can) and that they get to the bottom of your leg pain.

Also, Grumpier from the other forum was asking about you and wanted to send well wishes. : )

Much Love!

İmage

I am waiting for the doctors to visit then I will know the blood results today. As soon as I know I will be sure to post them on here.

Thanks.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 06:08 PM #473
Little L Member
Posts:118 Threads:4 Joined:Sep 2016
I hope today is treating you well.

It seems that the doctors are not liking having somebody who actually wishes to make informed decisions about their body....they should be grateful that they have a patient who wants to work WITH them to gain a common goal - but I fear that they just want you to lie there like a sack of spuds and just be a good little quiet patient willing to eat up all the crap they want to throw your way.....can't have us little people trying to elevate ourselves and bruise the docs ego, can we?!

Gah! SO frustrating.

You could be the first properly documented case of a remission involving alternative methods but they are just clipping your wings constantly.

Sending love x

"My life consists of swinging around on poles, using billion dollar satellites to find tupperware hidden in the woods, overdosing on Mighty Boosh, Monty Python and Reeves & Mortimer, eating, working, and occasionally attempting to be an adult"
09-14-2016, 06:37 PM #474
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 06:08 PM)Little L Wrote:  I hope today is treating you well.

It seems that the doctors are not liking having somebody who actually wishes to make informed decisions about their body....they should be grateful that they have a patient who wants to work WITH them to gain a common goal - but I fear that they just want you to lie there like a sack of spuds and just be a good little quiet patient willing to eat up all the crap they want to throw your way.....can't have us little people trying to elevate ourselves and bruise the docs ego, can we?!

Gah! SO frustrating.

You could be the first properly documented case of a remission involving alternative methods but they are just clipping your wings constantly.

Sending love x

Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 06:41 PM #475
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
The doctors have finally turned up. The sodium level is slightly up at 21 a good sign.

They will give me an MRI scan and see what that tells them. They are thinking it is a pinched nerve in the spine.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 06:48 PM #476
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 06:37 PM)NODOOM Wrote:  Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif
09-14-2016, 06:51 PM #477
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 06:41 PM)NODOOM Wrote:  The doctors have finally turned up. The sodium level is slightly up at 21 a good sign.

They will give me an MRI scan and see what that tells them. They are thinking it is a pinched nerve in the spine.

Thank you for your update. I thought of the need for a MRI before they even said it. See my earlier post.

I am happy to hear about your sodium level increase.

Try to see about getting coconut water and vegetable juice. These two could be very helpful for maintaining normal sodium level.
09-14-2016, 06:52 PM #478
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 06:48 PM)MadameConcorde Wrote:  
(09-14-2016, 06:37 PM)NODOOM Wrote:  Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif

The standard routine anything outside of that well.........

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 06:56 PM #479
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 06:52 PM)NODOOM Wrote:  
(09-14-2016, 06:48 PM)MadameConcorde Wrote:  
(09-14-2016, 06:37 PM)NODOOM Wrote:  Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif

The standard routine anything outside of that well.........

They are lucky they are not dealing with me... I would give them a hell of a time until they would move their arses showing real efficiency.
09-14-2016, 06:59 PM #480
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 06:56 PM)MadameConcorde Wrote:  
(09-14-2016, 06:52 PM)NODOOM Wrote:  
(09-14-2016, 06:48 PM)MadameConcorde Wrote:  
(09-14-2016, 06:37 PM)NODOOM Wrote:  Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif

The standard routine anything outside of that well.........

They are lucky they are not dealing with me... I would give them a hell of a time until they would move their arses showing real efficiency.

The moment I refused the second Chemo is when everything changed.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014




Home 




 



DISCLAIMER / Terms of Service (TOS):
Kritterbox.com - Socialize anonymously, commentary, discussion, oddities, technology, music and more!  This website is provided "as is" without warranty of any kind, either expressed or implied. kritterbox.com shall not be liable for any damages whatsoever, including, without limitation, those resulting from loss of use, data or profits, whether or not advised of the possibility of damage, and on any theory of liability, arising out of or in connection with the use or performance of this site or other documents which are referenced by or linked to this site.
This website exists solely for the purposes of exchange of information, communication and general entertainment. Opinions from posters are in no way endorsed by kritterbox.com. All posts on this website are the opinion of the authors and are not to be taken as statements of fact on behalf of kritterbox.com. This site may contain coarse language or other material that kritterbox.com is in no way responsible for. Material deemed to be offensive or pornographic at the discretion of kritterbox.com shall be removed. kritterbox.com reserves the right to modify, or remove posts and user accounts on this website at our discretion. kritterbox.com disclaims all liability for damages incurred directly or indirectly as a result of any material on this website. Fictitious posts and any similarity to any person living or dead is coincidental.
All users shall limit the insertion of any and all copyrighted material to portions of the article that are relevant to the point being made, with no more than 50%, and preferably less of the original source material. A link shall be visible in text format, embedded directly to the original source material without exception.
No third party links, i.e. blogs or forums will be accepted under any circumstances, and will be edited by staff in order to reflect the original source of copyrighted material, or be removed at the sole discretion of kritterbox.com.
Fair Use Notice:
This site may contain copyrighted material the use of which has not always been specifically authorized by the copyright owner. Users may make such material available in an effort to advance awareness and understanding of issues relating to economics, individual rights, international affairs, liberty, science, and technology. This constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C.Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for educational and/or research purposes.
This Disclaimer is subject to change at any time at our discretion.
Copyright © 2011 - 2017 kritterbox.com