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Prayers For Nigel
09-14-2016, 07:06 PM #481
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 06:59 PM)NODOOM Wrote:  
(09-14-2016, 06:56 PM)MadameConcorde Wrote:  
(09-14-2016, 06:52 PM)NODOOM Wrote:  
(09-14-2016, 06:48 PM)MadameConcorde Wrote:  
(09-14-2016, 06:37 PM)NODOOM Wrote:  Yes they sure don't like me showing that I will try anything not in there approval to fight this.

But what do they know?

They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif

The standard routine anything outside of that well.........

They are lucky they are not dealing with me... I would give them a hell of a time until they would move their arses showing real efficiency.

The moment I refused the second Chemo is when everything changed.

I gathered that.
It means they are not doing their work the way they should. They have a duty toward you as a patient in their ward.
Show them you are the boss. Not them.
09-14-2016, 07:10 PM #482
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 07:06 PM)MadameConcorde Wrote:  
(09-14-2016, 06:59 PM)NODOOM Wrote:  
(09-14-2016, 06:56 PM)MadameConcorde Wrote:  
(09-14-2016, 06:52 PM)NODOOM Wrote:  
(09-14-2016, 06:48 PM)MadameConcorde Wrote:  They don't seem to be doing much of anything aside from routine care and even this, I am not really sure.

They don't seem to be showing much knowledge and then I see no decision making. They seem to have no answers aside from platelets count, sodium level, chemo and morphine to ease the pain.

zombie.gif

The standard routine anything outside of that well.........

They are lucky they are not dealing with me... I would give them a hell of a time until they would move their arses showing real efficiency.

The moment I refused the second Chemo is when everything changed.

I gathered that.
It means they are not doing their work the way they should. They have a duty toward you as a patient in their ward.
Show them you are the boss. Not them.

I think they take the attitude that if I don't do the Chemo then it means I have given up. Therefore their duty is palliative care now. They are even talking about moving me to a hospice!

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 07:42 PM #483
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 07:10 PM)NODOOM Wrote:  I think they take the attitude that if I don't do the Chemo then it means I have given up. Therefore their duty is palliative care now. They are even talking about moving me to a hospice!

I can see this is what they are doing.

Don't let them move you to a hospice ever and then you are not in a palliative care ward - at least not that I know of.

They are just lazy. They find the excuse as you have no intention of going their way. You are not a sheep. They are used to patients that will follow everything they are being asked.

They don't like it that you are different. I can see this.
Don't let them play their game.

I thought of something... Every big city in the world... maybe also London... has one hospital or several... known for not being adverse to natural treatment, maybe even encourage natural treatment.

I am talking about public hospitals, not private. Maybe you should have somebody look if there is one that would take you in?
09-14-2016, 07:55 PM #484
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
This is a nice story for you to read:

Herbal life: traditional medicine gets a modern twist in Iran
Iranians have long used traditional remedies to cure all kinds of ailments - pennyroyal to soothe, chicory to purify, marjoram to lift the spirits. But a rapid recent growth in traditional medicine has led to problems with regulation

https://www.theguardian.com/world/iran-b...hranbureau
09-14-2016, 08:13 PM #485
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
I have had that happen to me with doctors, Nigel. So long as you dutifully follow all their instructions, they're very sweet - but the minute you politely say, 'Thanks, but no thanks', their whole attitude changes, like a switch being flicked off!

You may be the one in charge in theory, but in practice, you're not in a strong enough state to argue and get them to change.

If you could be moved to another, more helpful hospital, for instance one sympathetic to holistic treatment, would you? If so, tell us, and we will get on it and contact all other possible places in London for you (I am sure you do not have the energy!) and explain your situation, and ask if you can be transferred.
09-14-2016, 08:44 PM #486
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 08:13 PM)Arcturian Wrote:  I have had that happen to me with doctors, Nigel. So long as you dutifully follow all their instructions, they're very sweet - but the minute you politely say, 'Thanks, but no thanks', their whole attitude changes, like a switch being flicked off!

You may be the one in charge in theory, but in practice, you're not in a strong enough state to argue and get them to change.

If you could be moved to another, more helpful hospital, for instance one sympathetic to holistic treatment, would you? If so, tell us, and we will get on it and contact all other possible places in London for you (I am sure you do not have the energy!) and explain your situation, and ask if you can be transferred.

I would be very happy if you are able to see what would be available as an alternative yes so please do. Thanks

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 09:04 PM #487
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 08:44 PM)NODOOM Wrote:  
(09-14-2016, 08:13 PM)Arcturian Wrote:  I have had that happen to me with doctors, Nigel. So long as you dutifully follow all their instructions, they're very sweet - but the minute you politely say, 'Thanks, but no thanks', their whole attitude changes, like a switch being flicked off!

You may be the one in charge in theory, but in practice, you're not in a strong enough state to argue and get them to change.

If you could be moved to another, more helpful hospital, for instance one sympathetic to holistic treatment, would you? If so, tell us, and we will get on it and contact all other possible places in London for you (I am sure you do not have the energy!) and explain your situation, and ask if you can be transferred.

I would be very happy if you are able to see what would be available as an alternative yes so please do. Thanks

It gets my vote 100% as posted earlier.

I know they can be found. It is well worth investigating.

Would be a lot more relevant than where you are now.
09-14-2016, 10:18 PM #488
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
OK, I'll get on it.
I know your entire care history in a way that would probably stun the medical staff, as I was on the Other Thread from day one. :)
From what I've gleaned so far, you have to be referred by whoever's in charge of your care now, but I bet that could be done. (If they refused, you could just become so obnoxious that they start viewing the idea of your leaving favourably). chuckle.gif
Could the rest of you help search, too? (I'm on a tiny moblile phone, that balks at some websites if they use java). London area.

Will check in later, OK.
09-14-2016, 10:22 PM #489
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 10:18 PM)Arcturian Wrote:  OK, I'll get on it.
I know your entire care history in a way that would probably stun the medical staff, as I was on the Other Thread from day one. :)
From what I've gleaned so far, you have to be referred by whoever's in charge of your care now, but I bet that could be done. (If they refused, you could just become so obnoxious that they start viewing the idea of your leaving favourably). chuckle.gif
Could the rest of you help search, too? (I'm on a tiny moblile phone, that balks at some websites if they use java). London area.

Will check in later, OK.

Ok many thanks for this.

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 10:37 PM #490
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 10:22 PM)NODOOM Wrote:  
(09-14-2016, 10:18 PM)Arcturian Wrote:  OK, I'll get on it.
I know your entire care history in a way that would probably stun the medical staff, as I was on the Other Thread from day one. :)
From what I've gleaned so far, you have to be referred by whoever's in charge of your care now, but I bet that could be done. (If they refused, you could just become so obnoxious that they start viewing the idea of your leaving favourably). chuckle.gif
Could the rest of you help search, too? (I'm on a tiny moblile phone, that balks at some websites if they use java). London area.

Will check in later, OK.

Ok many thanks for this.

Have a look here.

http://www.friendsrlhim.org/home-2/the-r...nsultants/

http://www.friendsrlhim.org/
09-14-2016, 10:48 PM #491
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
(09-14-2016, 10:37 PM)MadameConcorde Wrote:  
(09-14-2016, 10:22 PM)NODOOM Wrote:  
(09-14-2016, 10:18 PM)Arcturian Wrote:  OK, I'll get on it.
I know your entire care history in a way that would probably stun the medical staff, as I was on the Other Thread from day one. :)
From what I've gleaned so far, you have to be referred by whoever's in charge of your care now, but I bet that could be done. (If they refused, you could just become so obnoxious that they start viewing the idea of your leaving favourably). chuckle.gif
Could the rest of you help search, too? (I'm on a tiny moblile phone, that balks at some websites if they use java). London area.

Will check in later, OK.

Ok many thanks for this.

Have a look here.

http://www.friendsrlhim.org/home-2/the-r...nsultants/

http://www.friendsrlhim.org/

Does not say anything about inpatients though?

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014

09-14-2016, 11:10 PM #492
MadameConcorde Member
Posts:103 Threads:0 Joined:Sep 2016
(09-14-2016, 10:48 PM)NODOOM Wrote:  
(09-14-2016, 10:37 PM)MadameConcorde Wrote:  
(09-14-2016, 10:22 PM)NODOOM Wrote:  
(09-14-2016, 10:18 PM)Arcturian Wrote:  OK, I'll get on it.
I know your entire care history in a way that would probably stun the medical staff, as I was on the Other Thread from day one. :)
From what I've gleaned so far, you have to be referred by whoever's in charge of your care now, but I bet that could be done. (If they refused, you could just become so obnoxious that they start viewing the idea of your leaving favourably). chuckle.gif
Could the rest of you help search, too? (I'm on a tiny moblile phone, that balks at some websites if they use java). London area.

Will check in later, OK.

Ok many thanks for this.

Have a look here.

http://www.friendsrlhim.org/home-2/the-r...nsultants/

http://www.friendsrlhim.org/

Does not say anything about inpatients though?

Maybe you can look here:

http://www.uclh.nhs.uk/ourservices/servi.../home.aspx
09-14-2016, 11:10 PM #493
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Yes, I am having to add "inpatients" to the search terms, as so many sound great, but turn out to be clinics, basically.

Nigel, while looking, I stumbled upon this by accident, and thought you might find it interesting.
* * * *

Small cell lung cancer/met to
brain
Sun Jan 04, 2015 9:39 am
by shadow4022

» Fri Jun 08,
2012 7:43 am

Hi just wanted to let people know not to give up. Doctors said 2 years ago that i would probably have 2 months to a couple of years to live if i'am lucky.Well 2 years and 3 months later I have a remarkable story of complete remission. Went through chemo and rad. at first then had a met to the brain underwent the gamma knife to blast the tumor in the brain. Had my second mri of the brain and third pet scan since the start of this and today complete remission. Nothing showed up at all. I have been on hemp oil for 3+ months taking it 3 times a day and i also juice veggies daily and no sugars and very little red meat maybe once every week or so but its meat from our local farmers angus cows that are mostly grass fed except for when there is no grass then he has to use his own grain. We live in Florida so we mostly have grass year round.
Just want to thank Justin and Christen for all there help to get me where i am today. I will continue the regime the rest of my life. By the way I'm, a 64 year old in great health and shape other than the cancer. Will continue to update all on my progress. Forgot to mention i had small cell lung cancer which is not operable.
Today i walk, ride my bike and take care of my pool on a daily basis. Also thinking of getting a part time job that's how good I feel. Hope this will help someone out there.

shadow4022
New User
Posts: 2

* * * *


It was on here:

http://www.hempoilhope.org/viewtopic.php?t=246
09-14-2016, 11:46 PM #494
Arcturian Member
Posts:86 Threads:0 Joined:Sep 2016
Still looking at all facilities in/around London. Am really fuming by now at the attitude of the Big Pharma lot to alternative treatments. They concede that in TWENTY YEARS, they have made no progress in treating stage 4 SCLC, but they sneer at alternative treatment advocates as 'nutjobs', I'm starting to get really angry. And of course they conveniently ignore all the success stories!!!!

http://www.hempoilhope.org/viewforum.php?f=10

Will be back later, if I appear to vanish it's because sometimes kritterbox won't let me on, but I keep trying and can usually get back on within 12 to 24 hours.
09-15-2016, 01:32 AM #495
The Survivor Truthtard
Posts:5,013 Threads:522 Joined:Sep 2012
Just a quick update on the leg problem.

I now have a rash developing in 2 places on the foot one on the top just below the far right toes. The other on the left not far from the start of the heel. It seems that this is a fast developing issue and certainly has me worried,

Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.


https://twitter.com/NigelLondon2014




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