(10-05-2016, 07:14 AM)I-Mezzo Wrote: I see no one has posted any other message the last 36 hours. I hope things are ok with you there Nigel. Sending positive thoughts and vibes your way. Stay safe!
Everything is far from ok my friend but I am somehow managing..
I am still getting the severe burning pains in my leg and foot on regular occasions that leave me screaming out in pain.This is a pain I have never known to be so painful. I would not wish pain like this on anyone.
Anyway I sleep currently in 2 hourly increments which is not really doing me any good. I can not sleep in bed only in a chair at the moment, my appetite is hindered by the fungus infection (flush) that is covering my tongue and roof of my mouth. I feel to eat but everything I eat or drink tastes of a disgusting kind of chemical, metallic taste that stops me.
Today I will have a visit from the Oncologist, palliative care team, Macmillan nurse, and social worker all together. The idea is that as I am so ill currently to find a care plan that works best for me both in the short term and long term. Basically the support they promised me from home has up to now not really worked.
We will see what they come up with.
Hope everyone has a good day.
Life is like a penny, you can spend it on what you like, but you can ONLY spend it once.